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[DYSPHAGIA] Bruxism & limited food preferences
>----- Original Message -----
>From: "Ellen Holzmann" <Ellen@uplandersage.com>
>To: "Dysphagia listserv'" <dysphagia@medonline.com>
>Sent: Saturday, November 10, 2001 6:25 PM
>Subject: [DYSPHAGIA] Bruxism & limited food preferences
>
> > Just this past week I have had 2 children placed on my caseload. One
> > with Downs Syndrome (DS) and the other with Wiskott-Aldrich syndrome
> > (WAS).
> > Both Children are approx. 4 years old. One child (WAS) is refusing
> > all foods by mouth (g-tube)
>
>From: "Irene Campbell-Taylor" <ripley@yahoo.com>
>I'm curious as to the reason for refusing all food p.o. Does he, perhaps,
>have oral bleeding? Since the disease is autosomal recessive
>thrombocytopenia with signifiant immunosuppression and susceptibility to
>infections etc. etc. I wonder why the tube was placed originally.
From historical information from his Mom, the G-tube was placed prior
to his bone marrow transplant surgery over a year ago.
>If he does have chronic oral bleeding with pain then the probability
>of total oral
>intake may not be great.
Good question, however no he does not have oral bleeding and is
receptive to tooth brushing with Collis Curve or Dentrust toothbrush.
>Life expectancy being as limited as it is in WAS, I
>wonder whether getting him to follow your excellent idea of modelling
>licking food from fingers may not be as far as one can go.
Life expectancy prognosis is limited and he has exceeded expectations
(most children do not live past 4 years of age).
He has a super supportive family and he is just precious, curious in
others and his environment and engaging. We are going into this let's
explore safely and see where it takes us. In the past his tube
feedings have been separate from mealtimes and lately he sadly goes
to his room and cries because he wasn't made apart of the
sociableness of meals.
>The other question I have is this:
>Is he taking any medications consistently? Some can cause bruxism.
>Irene.
I will check again on what medications he is on and levels/dosages.
Thanks,
Ellen
***************************
Uplander Sage Inc.
PO Box 1425
Lander, WY 82520
http://www.UplanderSage.com
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