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[Dysphagia] Cleft Palate Nipples
In preemies or with micrognathia, the NUK and the Pigeon are too large. The Mini-Haberman may work for her along with other important techniques such as upright positioning, chin support, etc. I would also recommend visiting the Cleft Palate Association's website, www.cleftline.org or (800) 24-CLEFT for any assistance in ordering special bottles and as a great resource.
Tiffany
-----Original Message-----
From: dysphagia-bounces at dysphagia.com
[mailto:dysphagia-bounces at dysphagia.com]On Behalf Of
dysphagia-request at dysphagia.com
Sent: Monday, October 08, 2007 1:00 PM
To: dysphagia at dysphagia.com
Subject: Dysphagia Digest, Vol 47, Issue 17
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Today's Topics:
1. Re: MBS standing (Kathryn Nelson)
2. Re: MBS standing (gerriann jackson)
3. Swallowing while standing (Irene Campbell-Taylor)
4. Re: barium cookie recipe (Lonna.Schmidt)
5. Cleft palate nipple (Dani R?egg)
----------------------------------------------------------------------
Message: 1
Date: Mon, 8 Oct 2007 08:41:11 +1000
From: "Kathryn Nelson" <Kathryn.Nelson at disability.qld.gov.au>
Subject: Re: [Dysphagia] MBS standing
To: "Candace Grant" <candaceg at vitelcom.net>, <dysphagia at b9.com>
Message-ID:
<8E3033A56445944B908EE0F4594045B674AEB2 at DC105WEXMSV04.ebus.root.internal>
Content-Type: text/plain; charset="us-ascii"
Hi Candace,
I guess my primary concern with this would be that people generally sit
down to eat. It would change the pt's posture and overall positioning
(more than the test already does). While it may not have an effect on
swallowing function, I have found that the slightest change from the
norm can make all the difference. Additionally, as people who go for
MBS/VFSS are often hospital pts or are unwell/disabled, requiring
someone to stand may result in physical fatigue, which in turn may make
the swallow 'worse' than it actually is. However, I work with people
with disabilities, so the fatigue may only apply to my caseload...
Also, I am unfamiliar with the laws in your region, but wouldn't that
technically be breaching discrimination laws - not providing services
that are accessible to people with disabilities?
I would invest in a chair.
Kathryn.
Kathryn Nelson
Speech Pathologist
Disability Services Queensland
Adult and Community Support Services (Accommodation Support)
West Brisbane team
-----Original Message-----
From: dysphagia-bounces at dysphagia.com
[mailto:dysphagia-bounces at dysphagia.com] On Behalf Of Candace Grant
Sent: Saturday, 6 October 2007 6:26 AM
To: dysphagia at b9.com
Subject: [Dysphagia] MBS standing
A radiologist wants to start doing MBS/VFSS studies. He does not have a
chair and wants to study people standing up. Besides eliminating all the
patients who are unable to stand and require posture assistance, is
there
any reason NOT to perform this standing up?
Thanks.
Candace Grant
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------------------------------
Message: 2
Date: Sun, 7 Oct 2007 18:48:20 -0400
From: "gerriann jackson" <gjackson at rochester.rr.com>
Subject: Re: [Dysphagia] MBS standing
To: "Kathryn Nelson" <Kathryn.Nelson at disability.qld.gov.au>, "Candace
Grant" <candaceg at vitelcom.net>, <dysphagia at b9.com>
Message-ID: <MDEHIFEODKBJKNEJHBDCEEBBCOAA.gjackson at rochester.rr.com>
Content-Type: text/plain; charset="us-ascii"
Standing would change swallow function by changing the gravitational pull on
the bolus.
-----Original Message-----
From: dysphagia-bounces at dysphagia.com
[mailto:dysphagia-bounces at dysphagia.com]On Behalf Of Kathryn Nelson
Sent: Sunday, October 07, 2007 6:41 PM
To: Candace Grant; dysphagia at b9.com
Subject: Re: [Dysphagia] MBS standing
Hi Candace,
I guess my primary concern with this would be that people generally sit
down to eat. It would change the pt's posture and overall positioning
(more than the test already does). While it may not have an effect on
swallowing function, I have found that the slightest change from the
norm can make all the difference. Additionally, as people who go for
MBS/VFSS are often hospital pts or are unwell/disabled, requiring
someone to stand may result in physical fatigue, which in turn may make
the swallow 'worse' than it actually is. However, I work with people
with disabilities, so the fatigue may only apply to my caseload...
Also, I am unfamiliar with the laws in your region, but wouldn't that
technically be breaching discrimination laws - not providing services
that are accessible to people with disabilities?
I would invest in a chair.
Kathryn.
Kathryn Nelson
Speech Pathologist
Disability Services Queensland
Adult and Community Support Services (Accommodation Support)
West Brisbane team
-----Original Message-----
From: dysphagia-bounces at dysphagia.com
[mailto:dysphagia-bounces at dysphagia.com] On Behalf Of Candace Grant
Sent: Saturday, 6 October 2007 6:26 AM
To: dysphagia at b9.com
Subject: [Dysphagia] MBS standing
A radiologist wants to start doing MBS/VFSS studies. He does not have a
chair and wants to study people standing up. Besides eliminating all the
patients who are unable to stand and require posture assistance, is
there
any reason NOT to perform this standing up?
Thanks.
Candace Grant
_______________________________________________
Dysphagia mail list: Normal and disordered swallowing information
Dysphagia at dysphagia.com
Manage subscription: http://lists.b9.com/mailman/listinfo/dysphagia
Visit the new Dysphagia Web Forum: http://dysphagia.com/forum
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*********************************
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is intended only for the use of the person or entity to which it is
addressed. If you are not the addressee any form of disclosure, copying,
modification, distribution or any action taken or omitted in reliance on the
information is unauthorised. Opinions contained in the message(s) do not
necessarily reflect the opinions of the Queensland Government and its
authorities. If you received this communication in error, please notify the
sender immediately and delete it from your computer system network.
_______________________________________________
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------------------------------
Message: 3
Date: Sun, 7 Oct 2007 20:18:18 -0700 (PDT)
From: Irene Campbell-Taylor <eripley at yahoo.com>
Subject: [Dysphagia] Swallowing while standing
To: dysphagia at b9.com
Message-ID: <342199.95020.qm at web30203.mail.mud.yahoo.com>
Content-Type: text/plain; charset=iso-8859-1
There are many studies of oropharyngeal swallowing conducted while the patient is standing and, apart from the obvious fatigue factor, makes no difference. One can even swallow while standing on one's head.
Some studies:
Deglutitlon after Near-Fatal Choking Episode:Radiologic Evaluation?
Michael J. Feinberg, MD Olle Ekberg, MD
Radiology 1990; 176:637-640
http://radiology.rsnajnls.org/cgi/reprint/176/3/637
Ivan Zammit-Maempel, FRCR, MRCP,1 Claire-Louise Chapple, PhD,2 and Paula Leslie, PhD3
Radiation Dose in Videofluoroscopic Swallow Studies
Dysphagia 22:13?15 (2007)
http://www.springerlink.com/content/k83263588j3j721v/fulltext.pdf
Temporal coordination of pharyngeal and laryngeal dynamics with breathing during swallowing: single liquid swallows
Bonnie Martin-Harris, Martin B. Brodsky,Christina Clare Price, Yvonne Michel, and Bobby Walters
J Appl Physiol 94: 1735?1743, 2003.
http://jap.physiology.org/cgi/reprint/94/5/1735.pdf
Dr I Campbell-Taylor
Clinical Neuroscientist
Exclusive Distributor:
www.interactivetherapy.com
------------------------------
Message: 4
Date: Mon, 8 Oct 2007 07:54:40 -0500
From: "Lonna.Schmidt" <lschmidt at jamestownhospital.com>
Subject: Re: [Dysphagia] barium cookie recipe
To: "'dysphagia at dysphagia.com'" <dysphagia at dysphagia.com>
Message-ID:
<A7E463A0EC53454899135AFB04750E3605ACD9 at FS05.jamestownhospital.com>
Content-Type: text/plain; charset="us-ascii"
This is the recipe I use and it works terrific.
1C granulated sugar
4T butter
1 egg
1/4 C milk
1t vanilla
2C flour
1t baking soda
1/4 t salt
10T (about 3/4 C barium powder
Heat oven to 375 degrees.
Beat butter in a large bowl until soft, adding the sugar gradually. Blend until creamy. Combine egg, milk, and vanilla, beat and set aside (in another bowl)
In a third bowl combine flour, baking soda, salt, and barium powder. Mix well. Add flour mixture and milk alternating. Beat batter after each addition. You may need extra milk if the batter is too sticky.
Place 1/2 inch portions of dough onto greased baking sheet. Sprinkle with sugar before baking. Bake 9 minutes. Cool before eating.
These cookies freeze nicely. They are small nuggets after baking. My patients have often asked for more. They also show up nicely in the VFSS studies.
Lonna J. Schmidt MST-CCC-SLP
Speech Pathologist
Jamestown Hospital
Jamestown ND
------------------------------
Message: 5
Date: Mon, 8 Oct 2007 07:19:28 -0700 (PDT)
From: Dani "R?egg" <daniruegg at yahoo.com>
Subject: [Dysphagia] Cleft palate nipple
To: dysphagia at b9.com
Message-ID: <728899.78943.qm at web30712.mail.mud.yahoo.com>
Content-Type: text/plain; charset=iso-8859-1
My patient is a premature newborn, iniciating now in
bottle feeding. It has been a hard work for her,
because she has a complete cleft palate. I would like
to know if you use any special nipple for prematures
with cleft palate. The nuk one is to big for her.
Thank you.
Danielle R?egg
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